Community Profile

Community Icon

ehlersdanlos's Journal

Free Account

Created on 2011-04-28 09:41:34 (#883436), last updated 2017-09-28 (2 weeks ago)

38 comments received

12 Journal Entries, 42 Tags, 0 Memories, 0 Icons

View extended profile

Name:Ehlers-Danlos syndrome & HMS support + discussion
Posting Access:All Members
Community description:Ehlers-Danlos syndrome and hypermobility syndrome support, research, resource and discussion.

Contact Details:

[community profile] ehlersdanlos is a community dedicated to support, resources and discussion regarding the various types of Ehlers-Danlos syndrome and hypermobility syndrome, as well as the multiple conditions that can be secondary to and linked with those illnesses.

To help anyone who doesn't already know anything about EDS and/or HMS, I will be making a post with links to useful research and resources shortly, and will link back to that here when it's up.

Rules are simple: please be kind to each other, put posts longer than a page under a cut, and cut and/or warn for common triggers such as discussion of weight, self-harming and so on. If you have any problems to do with the community or any of its members, please email me at trialia @ Thanks!

Interests (96):

ableism, agoraphobia, allergies, anxiety, arthritis, arthrochalasia, asthma, bendy, bipolar disorder, bjhs, chronic fatigue, chronic fatigue syndrome, chronic pain, classical, collagen, dancing, dentists, depression, dermatosparaxis, disability, discussion, dislocations, doctors, dysautonomia, eds, ehlers danlos syndrome, ehlers-danlos, ehlers-danlos syndrome, family, fatigue, fibromyalgia, fibromyalgia syndrome, flexibility, fms, ganglion cysts, gastritis, gastroparesis, genetics, headaches, health, hms, hospitals, hydrotherapy, hyperextension, hyperflexibility, hypermobile, hypermobility, hypermobility syndrome, hypochondriasis, ibs, illness, irritable bowel syndrome, jhs, joint pains, kyphoscoliosis, lordosis, marfan's syndrome, marfanoid habitus, me, medical research, medication, medicine, meds, menometrorrhagia, menorrhagia, mental illness, migraines, misdiagnosis, mitral valve prolapse, mobility, mobility aids, myalgic encephalomyelitis, myofascial pain syndrome, neuropathic pain, neuropathy, osteoarthritis, osteoporosis, pain, pain management, physiotherapy, postural orthostatic tachycardia syndrome, pots, pregnancy, raynaud's syndrome, relationships, research, resources, scoliosis, sexuality, speech therapy, subluxations, support, temporomandibular joint syndrome, tmj disorder, tricyclic antidepressants, vascular
Members [View Entries]
To link to this user, copy this code:
On Dreamwidth: